Privacy Policy

CMT Veda (the “App”) is an educational and awareness platform operated by the Charcot Marie Tooth Foundation of India (CMTFOI). It offers CMT screening guidance, a patient registry, curated knowledge, and an AI assistant (“Ask Veda”). The App is informational and educational only and does not diagnose, treat, or replace a qualified healthcare professional.

CMT Veda is operated by the Charcot Marie Tooth Foundation of India (CMTFOI). You can contact CMTFOI at connect@cmtfoi.org or through https://cmtveda.in.

Account creation: When you create an account, we collect the information you provide, such as your name and email address.

Authentication: You may sign in using email and password, or using Google sign-in. When you use Google sign-in, the sign-in provider shares only the account details needed to sign you in.

Profile and role: We store your profile information and any role assigned within the App (for example, patient, caregiver, clinician, or administrator).

Registry and health information: If you choose to participate in the registry, you may submit patient and health-related information. Submission is voluntary and based on the consents you provide.

Medical reports and documents: Where applicable, you may upload medical reports or documents. These are treated as sensitive information and are handled according to the consents you give.

Ask Veda usage: When you use Ask Veda, the questions you submit and the responses you receive are processed to provide the assistant service.

Usage information: We collect basic information about how you use the App, such as the pages you visit within the App, to operate and improve the service.

We use the information you provide to operate the App, to provide your account, screening, registry, dashboard, and Ask Veda features, to communicate with you about your account, and to improve and maintain the App.

We take reasonable measures to help protect the information you entrust to CMT Veda. Access to personal and health-related information is restricted on the basis of role and consent. Administrators are subject to additional access controls and audit logging. No method of transmission or storage is fully secure, so we cannot guarantee absolute security.

Ask Veda and any AI-generated content are provided for education and awareness only. AI can produce information that is incomplete, inaccurate, or out of date. AI-generated content is not a diagnosis, medical advice, or a substitute for a qualified healthcare professional. Always verify important information with a qualified clinician.

We do not sell your personal information. We share information only as described in this Policy, as needed to operate the App, or where we are required to do so by law. De-identified or aggregated information may be used for research and improvement of the CMT community, without identifying you.

CMT Veda uses third-party services to operate, such as authentication providers and hosting and database infrastructure. These providers process limited information on our behalf as needed to provide their service. We do not knowingly share your health-related information with third parties for their own marketing.

We retain your information for as long as your account is active and for as long as needed to provide the service and meet our obligations. Registry data is retained and managed according to the consents you provide and CMTFOI’s governance process. You may request deletion of your account and associated information, and we will respond in accordance with applicable law and the consents that govern registry data.

You may access, correct, or request deletion of your personal information through your account settings or by contacting CMTFOI. Where information is governed by registry consents, those consents explain the choices available to you.

For privacy questions or requests, contact CMTFOI at connect@cmtfoi.org or through https://cmtveda.in.

CMTFOI may update this Privacy Policy from time to time. When we do, we will update the date shown on this page and, where appropriate, notify you within the App.